Holiday Weekend

Aidan's holiday weekend was great! They let out school early on Tuesday due to the threat of severe weather (which never happened), and for the most part it didn't screw with him too badly. He was a little hyper and messed with the dogs a lot that afternoon but no meltdowns or anything like that. 

Krista (my little sister/adopted daughter - long story) and her husband, Ross, came into town Thursday morning and met us over at MawMaw & PawPaw's house for the holiday dinner. Uncle Matt was already there. Aidan's tummy was hurting (some constipation issues, which I hope will go away quickly since we've dealt with impacted bowels once before with him several years ago) so he didn't eat hardly any dinner. We all played games that evening and Ross let Aidan play with him, which Aidan REALLY enjoyed.

On Friday Krista & Ross came over in the afternoon and they hung out with Aidan, playing Battleship with him (Aidan won!) and legos in his room until about 5. Aidan loooooves his Krista - and she loves him back. Thankfully her new husband is great with Aidan as well. That night, Aidan got to spend the night at MawMaw & PawPaw's house which meant he got to spend LOTS of time with Uncle Matt (my little brother). They have a "mutual admiration society". Those two love each other more than anyone else I think. They spent the evening playing legos and video games, and the same the next morning.

Saturday afternoon Aidan got to go outside and play with his best friend Jonas. They apparently spent a good portion of the time "storm chasing" and even caught their first storm. I'm so excited to see Aidan's imagination growing and developing. It also makes me so happy that he has a friend who doesn't bully him and helps his imagination further develop.

Today Aidan has spent most of his day playing video games and watching TV. It's rainy, there's a cold front moving through, which usually affects his behavior pretty badly, so I'm letting him lay low and just relax. He's been quiet and not into any trouble for the most part today so we're thankful for that.

I really worry about the upcoming week since this past one was out of routine with getting out early on Tuesday and being out the rest of the weekend, plus the weather is changing big time. It was in the 60s or lower 70s yesterday and we're supposed to have snow Monday night/Tuesday morning. That's going to be an adventure...

Uh oh - you're too smart!

A new study was released stating that the rise in autism might be linked to "clever parents" and that "couples who are both strong systemisers, for example, those who studied and works in STEM subjects (science, technology, engineerings and maths) and other fields related to systemising, are more likely to have a child with an autism spectrum diagnosis than couples where only one is a strong systemiser, or where neither is". 

Right.

So I'm skeptical about this of course. But, assuming there's a grain of truth in it, I'd like to see the autism prevalence numbers here in Huntsville.  We have the highest number of PhD's per capita, and the second highest number of engineers in the world last I checked. That's a lot of "strong systemisers" in one area, and I know that a large portion of couples here in this area are dual engineer marriages.  If current national autism rates are hovering around 1 in 100, then what is the rate here?  I wonder what we'd have to do to find out? I know MANY dual "STEM" couples who do not have kids on the spectrum. I'd have to find out how many of my friends who DO have autistic children have one or both parents in an engineering or related field. Your input would be awesome!

You Might Be an Autism Parent If...

So for the last 24 hours on Twitter, the hashtag #youmightbeanautismparentif has been flooded with tweets from autism parents worldwide commiserating and joining in fellowship and camaraderie over what it means to be the parent of a child with autism. Here are some of my favorites:


You might be an Autism Parent If:

• You detest the phrase 'this too will pass', because it WILL take forever to pass..and it WILL be back, again.
• It's never easy to choose between telling your kid something ahead of time, & not warning them.
• Your 8 yr old has mastered every level of  Lego Star Wars but can't put on his own shirt w/out help.
• You're not sure who needs the padded helmet w/ faceguard more...your kid, or you.
• You know its a bad day when you find all the trains lined up
• You have more people that understand you in other states and countries than in your own neighborhood.
• You have to communicate in sequences....i.e. first brush teeth, then bedtime.
• You get so excited when your child masters a skill that he/she is a year or more delayed in!
• You know *just* how much silence is too much silence. And then you run to check on them.
• You use the phrase "use your words" repeatedly throughout the day
• Your son is 8 years old but still pees on his pants at least once a week.
• Your child makes up un-funny jokes in an attempt to understand humor, irony, and metaphor - unsuccessfully.
• The school staff hates to see you coming! Because they know you're not taking any crap when it comes to your kids!
• You make up songs for almost anything because your kid responds better to it.
• You have a heart attack when you see the school phone number on the caller i.d. Shit! What did he do now?
• You've ever carried a screaming, flailing child out of a store & you knew it was for the best.
• There are days you feel and look like a battered wife because your child had a major meltdown
• You're accused of being overly protective of your child, and overly sensitive to popular culture!
• Your kid has the hardest time telling you the simplest of things, but can turn Legos into amazing things with no plans
• Your child tells a joke over and over until somebody laughs
• Every activity you do comes with a series of warnings approaching the end of the activity.
• You can't vacuum without a 15 minute warning announcement
• You're sometimes amazed at the sounds and faces your child can make in a day!
• You have had someone say "maybe if you were more consistent...." and you want to gut punch them
• It doesn't matter how cold it is, your child WILL NOT go to sleep without the fan on in his room.
• Anything "_____tard" is likely to not only offend, but infuriate you!
• You start to realize the apple doesn't fall far from the...hey is that a squirrel?
• You really relate to ' Gerald Mc Boing Boing'
• Your twitter friends understand you and your child better than your local friends
• You know exactly what a pooptastrophe is and are happy beyond words when your child outgrows this behavior.
• Everytime ANYONE comes to your house your child tries to hijack them to come play legos with him. 
• You have to think through EVERYTHING you need to say first so that your child doesn't take something literally.
• You sigh when other people tell you how their parents handled that when THEY were kids. 
• You've given a complete stranger a tongue lashing for suggesting your kid has a discipline problem
• You're used to strangers looking to you for translation because they couldn't understand a word your kid said
• You sometimes have to remind yourself there are a lot worse things that could happen to your child than autism.
• You avoid public bathrooms because they are too loud and cause sensory overload.
• People always question your child's behaviour and the way you raise your child.
• You see no problem with your child scooting around on the floor with his head down for hours making weird sounds
• You've apologized to restaurant staff because your child said the place smelled bad and you had to leave.
• There are lines and lines and LINES of small toys all over the place
• You know your child was given dairy milk at school because he's acting crazier than normal.
• Your child refers to a friend as "The Third Boy" rather than by name even after a year.
• You forget how delayed your child's speech is until you hear a 4 yr old talk better than your 8 yr old
• You still get nervous before an IEP no matter how many times you've had one.
• You dont even blink an eye when seeing a child twirling and flapping in public
• You have to buy your child's favorite food in bulk quantities because anything else you buy will go uneaten.
• You have the child locks on your car doors because your child has tried to jump out driving down the road.
• Your 7 year old has designed 40 different versions of the Dominator from Storm Chasers 
• It makes you sick when other normal kids your child's age make comments or stare during an inclusive sport
• You feel like a stuck record when asking a kid to do a simple as "put your jacket on"
• You think a meltdown is something that happens to a child, not a nuclear reactor.
• You get pissed at parents of neurotypical kids because they call you selfish for NEEDING A BREAK
• Your child lectures you on the dangers of speeding as you drive them to kindergarten
• You can tell the difference between a meltdown and a temper tantrum even when nobody else can
• You have to explain EVERY step in the process. i.e. 1.raise hand 2.WAIT to be called on 3.answer.
• Your child has 3 time frames - Today, Tomorrow, and Later.
• You're afraid to put your child in sports because it could cause a sensory meltdown in public
• You've ever cleaned poop off the walls of your apartment at 5am.
• You plead with your child to be allowed to throw away the packaging
• You've ever cried because a teacher "gets it"
• You remarry and are super grateful that your spouse chose you and loves your child like his own.
• You've ever wanted to strangle a neighbor kid for bullying your child but were too busy crying instead.
• You've ever put special locks on your doors to keep your child from eloping.
• The words, "he doesn't look like he has Autism" make you roll your eyes.
• You don't even react to all the strange screeches, grunts, snorts, etc coming from your child.
• You've got Meltdown Early Warning Radar
• You want to cry when someone says, "He must be mild..."
• You use the Nintendo or ipod as a muffling device when you know you're going somewhere overstimulating
• You consider friends you've only talked to on-line as some of your most trusted confidants
• You know the name of every Thomas engine.
• You've wanted to strangle a parent of a neurotypical child who says your child just needs some discipline.
• Some days you don't have much to say to "normal" parents.
• There are three sets of rules on your fridge, including one your child made for the dog. (Rules are important!!)
• You celebrate with a friend when her child eats two bites of pancakes!
• You brace yourself for a tantrum when you inform your kid there's an errand you forgot, and wasn't on the list
• You've left a full cart in the store and left because of a meltdown.
• You consider twitter peeps you've never met, who have autistic children, some of your best friends.
• Your child has beaten Lego Star Wars 3 times in the last year and he's only 7.
• You watch a movie via your child mimicking it back at you instead of watching it on TV.
• You get excited when your child eats something more than chicken nuggets and pizza.
• You still bear scars from your child's last 3 meltdowns.
• You carry earmuffs and sunglasses in your purse for your child at all times.
• You get excited when your child swears because at least they said something.

I would try to credit everyone who tweeted these, but I couldn't even begin to try. So I'll just thank all the autism parents on twitter in general.  You guys are awesome and I couldn't do it without your support and humor!

STAR reading report

So apparently sometime this week Aidan took a "STAR Reading computer adaptive reading test".

His Grade Equivalent (GE) score was 1.3, which means that he reads at a level equal to that of a typical first grader after the third month of the school year. (Right on target!)

His Percentile Rank (PR) score was 61 which means that Aidan reads at a level greater than 61% of other students nationally in the same grade which is average.

His Instructional Reading Level (IRL) is "PP" which means "Pre-primer". Basically that he is at least 80% proficient reading pre-primer words and books. (Not sure what that means - what is "pre-primer"?)

His Zone of Proximal Development (ZPD) is 1.3-2.3 which means that he should be selecting books from that range (I'm guessing this means to pick books for first and second graders, although how I know what grade level a book is on isn't always clear).

So he's doing great on his reading skills! We're very proud because he got this AS WELL AS A HONOR ROLL this 9 weeks. What a smart cookie

First Nine Weeks! Success!

We've had a few bumps in the road over the past few weeks, but we've successfully navigated the first 9 weeks of school. Today Aidan got his report card both for his general ed class AND for his IEP. Figured you guys would all want to know what's up with him so far!

So for his Annual Goal report based on his IEP, Aidan is making some progress and mastery is anticipated on both goals. Goal one is that Aidan would be able to stay on task for 15 minutes, not interrupt or talk back to teachers --- the report card says that "Aidan is able to stay on task for 15 minutes but has to be reminded to stop talking out of turn. We are working on not interrupting and talking back to the teachers."  He is also working on tying his shoes without prompts, but he's having difficulty with the steps following making the first loop. We're still working on it at home and they're working on it at school, he's just struggling with it. I'm sure we'll have figured it out soon!

On his General Ed report card Aidan did great! HE'S ON A HONOR ROLL!!!!!!!! Congrats to Aidan! He's got a 92 in Reading, an A in Conduct, a 97 in Math, a 92 in English, a 100 in PE, a 100 in Art, and a 100 in Music! I'm super duper proud! 

A couple of weeks ago Aidan also read 8 books in one day so he could get a free pizza. The kid is just too smart!

Oh, AND he got a 100 on his practice spelling test today so he doesn't have to take it tomorrow. But that's usually what he does. He's just that darn smart. So there. :)

Bullying - My fears and hopes as a mother

I posted this on Facebook a while back, but somehow it never made it here.

A decade ago (well, more than that now, but close) we watched the horror of Columbine (and other tragedies like Paducah and Little Rock) where the result of bullying was the lashing out of those who were bullied so that they took the lives of others in their desperation.  What did we do? We didn't stop the bullying. We didn't tell our kids how wrong it was or pound into their young brains (I was a kid then, Columbine was my junior year of high school) how much harm and heartbreak they were doing to those they bullied. It was never stressed how very wrong it was, or even what exactly bullying is. We were given mesh backpacks and told we couldn't wear black and made to walk through metal detectors and be watched by security guards and cops.  We were taught fear, not tolerance.

At what point does "harmless fun poking" and "gossip" become bullying and defamation of character? When is it too much? We never taught that lesson. Even adults bully. We say bad things about even our friends behind their backs. I grew up being bullied. Not pushed around or cursed at or taunted, just shunned or snipped at, or worse nasty comments made when my back was turned or people thought I wasn't listening. It still hurts when I think about it, so I try really hard not to. It was so bad that even now, although people are nice to my face, I always wonder what they say when I'm not around - ESPECIALLY if they bad mouth other people behind their backs when I'm around.

Now, the result of bullying is no less tragic.

Instead of killing others, the victims of bullying turn their pain and anger inward. They cut, they cry, they ultimately kill themselves in way too many instances. The pain wrought by "harmless" words ends in the worst way possible. Never is a punch thrown, no kids are pushed down, half the time no mean words are ever spoken to the target's face. It's surreptitious, insidious, and devastating.

At what point do we teach kids better?!? My child has autism. He is disabled, and has a lot of difficulty with understanding social mores. Often he does strange things in order to cope with the world around him (Ear muffs at the grocery store? Roaring at friends when things are overstimulating him? Melting down for 45 minutes when he can't express his needs?).  He is afraid to be around our next door neighbor's 9 year old daughter (or their son). He knows that she says mean things to him, calls him stupid, calls him baby, taunts him and tells him he can't play with her and her brother (who is Aidan's age).  Where in the world did she learn this behavior? Considering that when I approached her parents about her brother's bullying of Aidan, we were only answered with "Well Aidan sometimes does stuff too".  Wow. Really?  The fear that the bullying will only get worse as Aidan gets older and kids get meaner terrifies me. I can't even bear the fact that he might have to deal with the bullying I did - or worse.

How do we teach kids what defines bullying and why it's so harmful? When do we finally get across to them that enough is enough, and not only should they not bully but they shouldn't stand by while someone is BEING a bully? How bad do the consequences have to be, how many kids have to die before we finally say ENOUGH IS ENOUGH?!

As one of those kids who was an "outcast" and never one of the "cool kids", I vow that my child will know exactly what bullying is and why it's wrong, and that he will be taught that it is NEVER acceptable, whether he's the one doing it, or someone is doing it to him or someone around him.  Will you do the same and stop this endless cycle of heartbreak?

Is Different Wrong?

I had a discussion today with a psych professor about autism and whether it was an atypical/wrong developmental path or just an alternate/different path. When there are more than 1 in every 100 kids who have autism, then is it truly atypical, or a sign that some children are just evolving into taking a different pathway through the developmental process? If we see the path autistic children take (or rather, paths) as negative and wrong and something to be altered or stopped, perhaps we're hindering their journey.

Ultimately the goal for any child is that they be able to function in society – socially, physically, economically, etc. Our job as parents is to give our children the tools to make that often difficult journey to adulthood and independence. Perhaps we need to take a step back from the situation. What if we approach autism as a different path rather than just a disability. I prefer to think of Aidan as different, not damaged. If I take into account the different path he's on, and try to ascertain what the differences ARE in that path, then I can give him appropriate tools for that particular path he's taking.

Aidan's big differences have been in speech, potty training, and social maturity. He stopped speaking around age 2 and stopped potty training as well, after normal and even accelerated development up until that point. It took him about two years to catch up and he's been about two years behind ever since. He's almost 8 years old and in first grade and that's a really big deal because he's made it this far. I think that as time passes that maturity gap will slowly grow smaller. Each child with autism has a different set of developmental differences or challenges. Actually, EVERY child has a different set of developmental challenges. Most of those challenges are predictable and acceptable and so we know what to do, based on others' experiences, to help the child along their developmental path. Speech therapy, physical therapy, occupational therapy and ABA therapy are tools for autistic children to meet those same developmental goals, but on their own path and timetable.

Same goal, different path. Is that really a bad thing?

20 Exclusion no-no's for teachers with autistic students in their mainstream classroom:

School is starting back! For the kids this can be an exciting time, but if your child has autism both you and he could be a bit worried about what's to come this year - especially if your child is moving into a mainstream classroom! Aidan's going to be in first grade this year, starting out with an aide with him in the mainstream classroom all day.

Here are twenty "obvious" rules for the mainstream teachers out there:

1. Try not to use metaphors or sarcasm - “it's a piece of cake,” or “let's put our thinking caps on” are things don't make sense to me and it will take you a while to explain. Sarcasm is even harder to understand!
2. Don't make jokes about clumsiness or difficulty speaking, even with the neurotypical children – it can make me even more self-conscious.
3. Don't dismiss me as having nothing to say or refusing to participate or not paying attention just because I don't speak up.
4. Don't give long strings of verbal instructions. Offer one step at a time and make sure to give me written or visual instructions or rules no matter how “simple” the instructions may be.
5. Don't assume that because I refuse to look you in the eye that I have an attitude or am lying about something. Make sure neurotypical students understand this about their autistic peers. Don't force a child to make eye-contact!
6. Don't assume that I will understand the gist of your rules or be able to apply them in a different way to other situations. I think of rules as literal, to be specifically followed to the letter in the situation in which they were presented. Generalizations are often useless to a child with autism.
7. Try not to plan class parties or field trips in situations that are loud or noisy.
8. Don't focus on a my disabilities, focus on my abilities. Don't use words like “weird” or “strange” or “bizarre” to describe children or their appearance or behaviors whether they are neurotypical or not.
9. Don't make changes in the schedule or expect me to react calmly to changes in the day that happen without warning. If there are unanticipated changes, don't reprimand me if I do react negatively.
10. Don't judge a me or reprimand me for choosing to communicate with you or my classmates in a way that is not speaking out loud – for example writing notes or drawing pictures.
11. Do not rush me or speak over a me if I'm struggling to verbalize something. Give me time to put my thoughts together and don't try to speak FOR me unless I look for help. Don't assume it's not important if I'm not able to verbalize it.
12. Don't punish me for being truthful! Sometimes a child with autism will say something that is painfully true (Joey smells bad, Ms. Smith's hair looks funny, etc). Also don't punish me for speaking up when I feel something is wrong or I have reached my limit.
13. Make sure my classmates and I have a trusted person we can go to if we need to bring up a problem we are having with fellow students or even our teacher (this is the first step in stopping bullying!)
14. Don't point out the strange behaviors I may exhibit while upset or distracted.
15. Don't fill every inch of wall space with pictures or every quiet moment with music – every poster, scrape of a chair, squeak of the chalk/marker is one more thing for me to focus on instead of my work.
16. Don't become impatient with me for not reacting or responding immediately after you give instructions or ask a question - give me a little bit of extra time for absorbing what you said.
17. Don't assume that certain ways of acting or speaking are “common sense”. Children with autism have to LEARN things that come naturally to most people.
18. Don't offer open ended choices (What do you want to eat?) - instead offer closed-ended choices (Would you rather have a hot dog today or chicken nuggets?)
19. Don't JUST send a note home if I have a meltdown or hit another child and definitely don't WAIT to make sure my mom and dad know! Call that day and explain exactly what happened to my parents. Notes just don't give enough information and aren't urgent enough.
20. Don't move from one activity in the day's schedule into another without some clear transition. Tell me how long until the next activity, what the activity is, and what is expected of my classmates and me during the activity.
    
    
    These are the rules I've got so far with help from the web and Twitter (I'm @thepyxie if you want to follow!). What do you have to add?  Feel free to print these out and hand them over to your child's teacher along with your phone number and email address so you know you can always stay in touch.

Dietary Concerns

This past week we had some “fun” with behavioral issues. Saturday evening we went to the grocery store, and of course took Aidan with us (normally Jeremy goes after work so that Aidan isn't with us – it cuts down on cost some and allows us to more closely examine labels because there isn't a 7 year old needing our immediate attention). He wanted some cheese puffs so without really considering whether they might adversely affect his behavior, we said sure, it would be a nice treat since he really was acting great at the store and had been great at dinner. The next couple of days were a wonderful mess of aggression, hyperactivity, attitude, and inattention. We removed the cheese puffs from the equation and last night and today Aidan has been great. We've seen this kind of thing happen before. In Rockford, on our trip to visit family, Aidan had ice cream twice in one day. It could have been the sugar, but much more likely was the milk since he has sugar in other things without adverse affects. Aidan was impossible for the next 24 hours. At school last year we didn't realize they were letting him have strawberry milk at lunch and for two weeks he was having major behavioral issues at school. Ms. Annie found out and we removed the milk and again, withing approximately 24 hours, his behavior was much more normal for Aidan. Similar situations have happened with both milk as well as artificial sweeteners. How many other issues that we didn't attribute to anything in particular have been caused by similar sources or by artificial colors or flavors or who knows what else?

Milk also causes tummy issues for Aidan – a couple of years ago we took him to the ER for what we thought was appendicitis and turned out to be an impacted bowel. We soon switched him to soy milk and started giving him Activia yogurt (I know, it's dairy and I think we'll look for a pro-biotic soy yogurt) to help with the tummy. I don't know if the milk directly causes the behavioral issues, or if it's actually the discomfort it causes in his tummy that maybe he can't communicate to us, but it seems like a pretty easy solution to remove it.

Should we try just a casein, artificial free diet? Should we do gluten free too? What does the research say? What other diet options are there – Feingold, Paleo?

We know dairy affects Aidan's tummy and his behavior – that's number one to remove. That means all casein/lactose products.

Casein has a wide variety of uses, from being a major component of cheese, to use as a food additive, to a binder for safety matches, paint, glue, plastics and fiber, medical and dental. (wikipedia)

Bad Ingredients:

• milk solids ("curds")
• whey
• casein (sodium caseinate, most commonly)
• lactose (sodium lactylate, frequently)
• lactalbumin and other names that begin with lact
• galactose (a lactose by-product) Most people with milk allergies will have no trouble with galactose, but you should be aware that it may cause problems in some people.
• protein (often "high protein" or "protein enriched" version of another ingredient, such as wheat) The added protein in foods (particularly "high energy" foods) is often milk protein.
• caramel coloring. Many kinds of caramel coloring use lactose, a milk sugar, to help get that rich color. When in doubt, do without.
• Recaldent. This ingredient, found in some Trident brand chewing gums, is milk-derived.
• Fruit flavored Tums contain undisclosed dairy. The original, white Tums are fine.
• "natural ingredients". Some of these may contain dairy products or byproducts. Call the manufacturer (an 800 number is usually listed on the packaging) for further information.
• and the obvious:
• milk,
• butter,
• cheese,
• yogurt...
• canned tunafish. Many brands contain "hydrolized caseinate". However, the low sodium ones in spring water (such as Star Kist), and all of Trader Joe brand tunafish, appear to be milk free.
• chicken broth: Any form, including canned and bouillion. Many brands contain milk solids.
• sour mix, such as what is used to make margaritas, or other artifically "sour" items such as some candies.
• Coconut milk powder (dried; not to be confused with canned coconut milk in liquid form). Every brand I've found to date contains casein, milk or cream.

Gluten (from Latin gluten "glue") is a protein composite found in foods processed from wheat and related species, including barley and rye. 

It is used as a food additive in the form of a flavoring, stabilizing or thickening agent, often as "dextrin". http://en.wikipedia.org/wiki/Gluten-free_diet Several grains and starch sources are considered acceptable for a gluten-free diet. The most frequently used are corn, potatoes, rice, and tapioca (derived from cassava). Gluten is also used in foods in some unexpected ways, for example as a stabilizing agent or thickener in products like ice-cream and ketchup. The standard gluten-free diet does not meet the recommended intake for fiber, thiamine, riboflavin, niacin, folate, iron, or calcium

http://www.urmc.rochester.edu/news/story/index.cfm?id=2860 The GF-CF (gluten free, casein free) Diet is a popular autism diet not shown to demonstrate behavioral improvement. (wikipedia)

The Feingold diet is a food elimination program developed by Ben F. Feingold, MD to treat hyperactivity. It eliminates a number of artificial colors and artificial flavors, aspartame, three petroleum-based preservatives, and (at least initially) certain salicylates. 

• synthetic colors (FD&C and D&C colors) (made with petroleum)
• synthetic flavors (several thousand different chemicals)
• synthetic preservatives (BHA, BHT, and TBHQ)
• artificial sweeteners (Aspartame, Neotame, and Alitame)
  

During the initial weeks of the program, certain foods containing salicylates are removed and may later be reintroduced and tested for tolerance, one at a time. Most of the problematic salicylate-rich foods are common temperate-zone fruits, as well as a few vegetables, spices, and one tree nut. During this early period, foods like pears, cashews and bananas are used instead of foods like apples, almonds and grapes. (wikipedia)

Do I need to really be aware of all of these? How much casein/milk product or relative is too much? Obviously Aidan isn't ALLERGIC to milk or any of the things listed. He doesn't get hives or have difficulty breathing or any major symptoms. But if it affects his behavior it still seems like a good idea to remove it from his diet if it can help him to function better at home and school.

Things Aidan loves that would have to be removed or altered with the casein free diet and the removal of artificial colors and whatnot:

• Pizza,
• ketchup
• ranch dressing
• yogurt
• pop tarts
• certain cereals
• macaroni and cheese/shells and cheese

If we did gluten free it would become even more complicated so I think that would be a last resort. In fact, mom pointed out that some studies show that a gluten free diet could be harmful to someone without celiac disease or a wheat allergy.

Summer Vacation Trip

We went to Rockford this past week and Aidan had a blast! He got to:

• Ride a trolley
• Blow the trolley whistle and ring its bell
• Climb on and around trains at the Illinois Railway Museum
• Visit his Great Grandparents
• Drive Great Grandma's scooter
• Ride an airplane
• FLY an airplane
• Ride on a boat
• Jump off a boat and swim in the middle of the lake
• Drive a boat
• Ride a four wheeler
• Ride in a canoe
• Paddle a canoe
• Light fireworks
• Roast marshmallows

Wow! What a week! It was a wonderful visit with Poppa, Grandma Holly, Auntie Arian, Auntie Mimi, Uncle Chris, and his many cousins (Autumn, Cody, Dani & Addy). He was super great for the 11 hour ride up and the 11 hour ride back, plus all the in between trips here and there.

We did have a couple of close calls as far as his autism. At the train museum he got super hungry and overstimulated and tired, and almost had a meltdown before we were able to get him food. Also, he had ice cream twice in one day and the dairy affected his behavior quite a bit – have to plan better next time! The only other really close call was the last day, visiting Great Grandma and Great Grandpa at their apartment. Aidan was at the end of his rope, tired and overstimulated and homesick. He started pushing and pulling and spinning Poppa's chair and after many times of being asked to stop, I asked him to come with me to the hall so we could talk. Aidan ran away and went in Great Grandpa's office where he proceeded to have a mini-meltdown (aggressive, stiff, arching his back, growling, nonverbal). We got him calmed down, gave hugs and left. Otherwise, it was an all in all awesome trip! Hopefully we can do it again soon. I know Aidan had a blast!